Blog

Jonathan Dale’s Story

Jonathan Dale is a remarkable young man. He has intractable epilepsy which means that his seizures are not controlled by medication. Despite having daily seizures, Jonny is always smiling and ready for whatever new adventure the day may bring. Epilepsy does not define him, it is just another lion to…...

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Joy Mayfield’s Story

“I have always lived what you might call a very typical and normal lifestyle. I come from a strong, supportive family and I value my friends and relatives immensely.  However, at age fourteen, my happy go lucky lifestyle began to change.  I had my first seizure and was diagnosed with…...

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Florida Voters Will Get Another Chance to Legalize Medical Marijuana

In 2014 a Florida ballot initiative allowing medical use of marijuana fell two points short of the 60 percent vote required for a constitutional amendment. That initiative’s supporters are trying again, and yesterday they announced that they had gathered enough valid signatures to qualify their measure, once again known as…...

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Epilepsy drug first to be made using 3D printer in US

February 12, 2016 – Epilepsy Society The US Food and Drug Administration has approved the first 3D-printed pill called Spritam levetiracetam. Manufactured by American pharmaceutical company Aprecia, the drug is used to control seizures in people with epilepsy. A 3D printer will be used to lay down the active and…...

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Mothers leading grassroots effort for medical marijuana

Moms are leading the grassroots effort for medical marijuana in Florida. Moms like Renee Petro. “It may not be perfect, but it’s better than what we have right now. How do I know? Because I have tried them all.” Petro’s 13-year-old son, Branden, has a form of epilepsy. He is on a…...

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Epilepsy: What a Seizure Looks Like, When it Looks Like Something Else

February 5, 2016 – The Huffington Post Alicia Gonzalez, CEO & Editor at 24/7 Modern Mom, writer, speaker, and advocate. My daughter was just two years old when she had her first seizure, due to Epilepsy. I didn’t see it happen. I wish I had, because for the longest moment of…...

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Marijuana-Based Drug Found to Reduce Epileptic Seizures

March 14, 2016 – The New York Times Epidiolex contains almost pure cannabidiol, a component of the marijuana plant that does not make people high. Credit via GW Pharmaceuticals An experimental drug derived from marijuana has succeeded in reducing epileptic seizures in its first major clinical trial, the product’s developer…...

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Massachusetts boy saves mother’s life during seizure

March 22, 2016 – Foxnews.com Matthew Fontaine saved his mother’s life when she had a seizure. A 4-year-old Massachusetts boy is being hailed as a hero after saving his mother’s life when she suffered a massive seizure. When Matthew Fontaine’s mother, Ashley, who suffers from regular seizures, had a seizure…...

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Medical marijuana in Florida: Compassion a good bet on ballot

March 23, 2016 – Orlando Sentinel Two years ago, the medical marijuana constitutional amendment was on the ballot. Even though a majority of Florida voters supported it — 58 percent — it failed to meet the 60 percent threshold needed for passage. There was a strong and well-financed opposition that…...

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