Build your child's own epilepsy care notebook:
A patient’s basic personal and medical information, including a Seizure Action Plan, which shows how to deal with a seizure in emergency situations.
Medical ID Card
A wallet-sized card designed to be carried by the child in his or her school back pack or wallet as a handy and reliable medical summary for school or emergency situations. The Medical ID card is a safe and reliable back up for reducing potential allergic reactions/interactions, intolerances or side effect profiles.
Seizure Log
A seizure tracking record
Medication List
A list of current and former medications and side effects
Medical History
An organizational section where you should keep your child’s important, most recent medical records.
Special Needs Parenting Handbook
Raising a child with special needs can be difficult, but from that difficulty is born a greater appreciation for the human spirit. This “handbook” offers resources for parents at every stage of the journey of caring for their special needs children. From learning more about special needs to picking a school, planning a financial future, and getting past the bullying and discrimination that so often plague people with special needs. http://phdinspecialeducation.com/special-needs-parenting-handbook/
PCDH19 Alliance
If you have been diagnosed with PCDH19 Female Limited Epilepsy or are a female with difficult to control seizures or have a daughter with difficult to control seizures please visit PCDH19 Alliance for more information, and talk to your doctor about a PCDH19 test. Click here for Patient and Medication Assistance Programs
Seizure Tracker
National Health Care Transition Center
Stop Bullying
http://www.StopBullying.gov Visit www.OnlineSchools.org for a Guide on Understanding Bullying and Cyberbullying
Click here for a Cyberbullying Awareness and Avoidance Resource Guide
Free Bicycle Program (South Florida)
Recyclable Bicycle Exchange located in Fort Lauderdale works to supply quality and safe bikes to the kids (big kids too) of South Florida as a means of introducing an entertaining activity that promotes an active lifestyle.
