seizures

Why Doctors Worldwide Are Looking Into This Little Boy’s Condition

May 19, 2016- The Huffington Post A little boy diagnosed with a rare epilepsy syndrome now has doctors around the world — and supportive Facebook users — keeping up with his condition. In March, Maryland 5-year-old Cameron Longley was admitted to the hospital after having seizures that seemed to be…...

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Saving Lives With the Tech That Saved Our Son

May 30, 3016 – The Huffington Post One morning, in 2012, my wife and I were viewing the footage from a CCTV camera, setup in our son’s bedroom. Our son is called Tom. Tom suffers from Dravet syndrome, a rare genetic epileptic dysfunction of the brain, and most seizure activity…...

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10-year-old raises money for children’s hospital

By Jesse Buchanan – Meriden Record- Journal June 8, 2016  When the speaker stopped working on an iPad used by the Connecticut Children’s Medical Center to help teach pronunciation, 10-year-old Gavin Haines wanted to get a replacement. Since then his fundraising — which has included bake sales, donations from businesses,…...

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Brain pacemaker reduces seizures in patients (featuring Board Member – Dr. Tarek Zakaria)

By Kristi Krueger – Local News 10 June 07, 2016  HOLLYWOOD, Fla. – Spider-man was a lucky guy – one bite from an eight-legged creature gave him superpowers. When a brown spider bit Krystle Thrasher, 29, it caused five years of debilitating seizures. “I get very confused after,” Thraser said, describing the…...

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Marijuana-Based Drug Found to Reduce Epileptic Seizures

March 14, 2016 – The New York Times Epidiolex contains almost pure cannabidiol, a component of the marijuana plant that does not make people high. Credit via GW Pharmaceuticals An experimental drug derived from marijuana has succeeded in reducing epileptic seizures in its first major clinical trial, the product’s developer…...

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Florida Patient Stability Act will protect against health plan changes

By: Karen Egozi Sun Sentinel – February 18, 2016 Imagine you are living with epilepsy. It’s not hard to do — 400,000 Floridians suffer from it. For years, you’ve been stable on a treatment that controls your seizures, allows you to work, drive your car, care for your children and…...

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Lead Letter: Florida’s Epilepsy Sufferers Need Medical Marijuana

By Karen Basha Egozi, Jacksonville January 30, 2015 Imagine a seizure striking without warning while attending your son’s or daughter’s soccer game. This is the fear that more than 375,000 Floridians and their families face every day involving epilepsy. The mission of the Epilepsy Foundation of Florida is to eliminate…...

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Floridians Wait for Low-THC Cannabis Treatment Due to Health Department’s Failings

By William Patrick, Florida Watchdog December 10, 2014 TALLAHASSEE, Fla. — Charlotte’s Web isn’t just an adorable children’s classic. It’s also the name of a compassionate medical marijuana law passed by the Republican-dominated Florida Legislature earlier this year that’s having trouble getting off the ground. But due to administrative failings at the…...

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Medical Marijuana Forum

Published by: News 4 Jax October 2, 2014 VIDEO: A forum tonight at the Florida Coastal School of Law discussing the pros and cons of medical marijuana. The Epilepsy Foundation of Florida sponsored the forum designed not to take sides but hear both side of the issue. video platformvideo managementvideo…...

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Florida’s Epilepsy Foundation to Hold Medical Marijuana Forum

By Jonathan Millet, Fore Minutes October 2, 2014 The Epilepsy Foundation of Florida is scheduled to host a forum on medical marijuana today evening at the Pensacola Library as voters prepare to cast a ballot to decide whether to legalize the drug. The hearing will help families better understand the…...

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